month there is a special emphasis on the need for all of us to help family caregivers protect their health in order to have a more satisfying life and be better able to provide their loved one with the best care possible. (Family Caregiving 101) As one who has been caregiving for my own father off and on over the past year, I know first hand the importance of this job. I sat down and asked my daughter to run inside and get the phone. Wed like to be able to support all and provide HOPE to all. I bought him and mom a phone from somewhere like fanmisenior so that they could call me if they ever needed me and that gave them both a bit of independence. PHONE 425-444-2215 EMAIL wecare@endbraincancer.org We are here for you. They represent about 5% of adult brain tumors, and 10% of pediatric brain tumors, peaking at age 35 and earlier at age 5. Thank you for understanding. Make sure everyone has a voice and their voice is heard. Arguably brain cancer, especially GBM, is more deadly. Im a 10 year Glioblastoma brain cancer survivor. Over time, somebenign brain tumorsmay become malignant. I was fortunate enough to meet my wife on a blind date 12 years ago. All was well. If you have not yet taken the opportunity to donate $10 or moreto the Chris Elliott Fund for this NATIONAL AWARENESS CAMPAIN, please do so now. My father was diagnosed with a brain tumor in March 2010. The event also features a silent auction, wine basket raffle, vendors and more! She informed us of how important it is to seek medical []. Both Dellann and I tried very hard to have a normal life. So we started something new this year and its been a great success: our Brains Matter Webinar Series. One of those who will be honored is long time Western Washington news anchor Kathi Goertzen, who lost her battle due to complications from her brain tumor in August of 2012. Dellann was able to spend some time with me the day the I died too, although, she had already taken her opportunity to say goodbye and to tell me that it was alright to go now, that she loved me, thanked me for loving her and that she would FOREVER miss me. At age 39, in the prime of his life and father of two young children, Chris Elliott was diagnosed with terminal brain cancer and given just one year to live. That is, in this week of cyber-shopping to please consider a bit of cyber-GIVING. CEF has raised more than $1 million for brain cancer research across the country and provides countless resources, information and support to people living with the disease. The Seattle resident also discovered the Chris Elliott Fund (CEF), a national nonprofit organization based in Redmond whose mission is to. The drug that was given to me controlled my grand mal seizure by paralyzing my body from the neck down to my waist and takes several hours to wear off. Im completely in agreement of the NEED to get the word out to people before theyve lost the options that would have otherwise been available to them! With his work for the thriller Rocket's Red Glare, he won Best Actor award in a Featured Drama at the New York Independent Film & Video Festival. Frank never complained, he really enjoyed building that father son relationship during Lynns last months. There is not another selfless father I know that deserves this more than Frank.Unfortunately Frank and Sheila lost Lynn to GBM in July of 2011. No one had mentioned that to us at the hospital, and in fact, they didnt seem to give it much credence at all. Her first thought was oh, no, someone has died. So, before we can expand and before I can hire the staff that we need, I need to raise about $250,000, so that is what Ive been focusing most of my energies towards. When I felt good, I felt good and played hard. Leavenworth Sleigh Ride/Lodge Experience Guided by our mission to end brain cancer [], Every year the Chris Elliott Fund hosts the Brains Matter Awareness Auction & Celebration Luncheon during the month of May as part of National Brain Tumor Awareness Month. Often they [], Radiation continues to be an effective method for treating glioblastoma brain tumors. I am a Brain Tumor Warrior. In order for physicians to take the appropriate further medical actions to treat the brain tumor the level (or stage) of the brain tumors is required. Glioblastoma (GBM) is the most common and aggressive form of . We never heard a discouraging word. He told me that he could do surgery instead to put in a shunt to help relieve some of the fluid and pressure in my brain and that this procedure might buy me two more months of life. In president Obamas proclamation in 2011 he stated: Across our country, millions of family members, neighbors and friends provide care and support for their loved ones during times of need. THANK YOU for your love and kindness. The Unity System will allow us to provide a better quality of life for brain tumor patients and their families and means a dramatic improvement in their chances to thrive. [], 1)More than 600,000 people in the United States are currently living with a brain tumorapproximately 209 out of every 100,000 people. Last year alone, 406 patients and 259 caregivers received individual and comprehensive support at []. I also know the support that is [], The Chris Elliott Funds (CEF) Dellann Elliott was one of 200 cancer advocates, doctors and survivors invited to attend a day of collaboration and brainstorming for the future of cancer care &research. Karen shares a few words about Brian, her caregiver hero: My brother dropped everything to stay and take care of our mom after she was diagnosed with grade 4 GBM. Dellann, though herself very busy as a single mother running this organization, made time in her busy schedule to meet with our family and friends. It is good to hear from you. I couldnt believe I had just heard what I had heard. US tennis legend Chris Evert has announced she is cancer-free and there is 90 per cent chance it will not return. Sinclair Estate Vineyards [], Hi Dellann, Ive been listening to your radio talk show from January 4th. They thought that I had meningitis, that Dellann and the kids had been exposed and that they would just be driving me to the hospital in a leisurely manner. My kids sat with me while I tried to decide what to do. Should I eat hot or cold foods? And thats what we are looking to do with our Brains Matter Series, change outcomes. Its been awhile since I last reached out, and I apologize. My Dad is the one fighting the brain tumor that has ravaged his body and taken away his independence HE is a Brain Tumor Warrior. However, after several days of recovery and a week in an in-house rehabilitation center and hours of physical and occupational therapy, the only thing that was different or remained from my surgery was a slight limp and of course, I was minus one brain tumor. Three different people randomly brought together by one of the deadliest diseases on earth. UW is a research hospital and has partnerships with other medical institutions in the Seattle area. My mom died from a Glioblastoma Multiforme. Well they did it the not so fun way and he came alive. After seeing this, Dellann KNEW something serious was wrong and started calling friends for childcare. That and playing golf! Frank wanted to do everything possible for Lynn, besides cooking for him, bathing him, lifting him in and out of his wheel chair, he even helped some health and home hospice do their routine daily duties and the girls enjoyed his help. Weve been educating and helping patients and caregivers for over 10 years. My family and I were up at our cabin at Crystal Mt. On the WALK, I see thousands coming out in support of their family and friends. The strength, love and courage demonstrated by my family and friends during my illness were such a beautiful gift to me. I was exhausted. Below is details on this months first webinar: Brains Matter Webinar Series: Top 10 Vital Questions You Must Ask Your Doctor IMMEDIATELY When Diagnosed with a Brain Tumor When: January 17th 2013 at 11:00am to 12:00pm PST Where: Your computer or phone, sign up to virtually attend this webinar Who: Dr. Greg Foltz, Neurosurgeon and Director of the Ivy Brain Tumor Center at the Swedish Neuroscience Institute of Seattle, WA Dellann Elliott, Founder and President, Chris Elliott Fund Maria Barrett, Health Information Concierge , Chris Elliott Fund What: The rush to learn as much vitally important information once diagnosed with a brain tumor is easily overwhelming. Sounds simple enough. Every president since, Republican and Democrat alike, have issued this annual proclamation appreciating family caregivers. And by the time they got the first two drains in they were not enough, so they had to go to surgery to do a craniotomy to relive some pressure and put in two more drains. We highly recommend finding a support group in your community, if you are not in the Seattle area. I went to visit him and mom every day but one day, we decided he had to move elsewhere. So, we consulted with UCSF. Advanced treatment options lead to improved quality of life and survivorship while also supplying critical live brain tumor tissue for cancer research. Christopher Stewart ElliottNovember 6, 1960 June 13, 2002, (function(i,s,o,g,r,a,m){i['GoogleAnalyticsObject']=r;i[r]=i[r]||function(){ Please join us and follow her story and experience as a patient advocate and brain cancer warrior. This landmark legislation incorporated several separate bills of particular interest to the cancer research community. Thank you Jim. Perhaps your company or organization would care to engage and provide in kind support to help us or provide underwriting to help propel strategic initiatives. Please take a minute and read Davids Story below. Respite care is short-term care provided by senior communities, adult daycares, and home care agencies. Unfortunately this would be the last time I saw my brother healthy, [], Jerry Dunaways Story, Part 2 Codi is a brain cancer warrior and offering her experience to the Chris Elliott Fund blog. 2-Megace 40 mg twice per day and Marinol 2.5 mg by mouth [], In my own personal journey through cancer, the thing that surprised me the most was the well-meaning advice of friends that could have killed me had I been naive enough to follow it. The Chris Elliott Fund for Glioblastoma Brain Cancer Research (CEF) is a non-profit organization that raises awareness and funds specifically aimed at taking on brain cancer. 25 year old Frank is the caregiver for his wife Heather, also 25, who was diagnosed with grade 3 brain cancer last December. Paris Wells, 28, was diagnosed Hodgkin's Lymphoma . The Chris Elliott Fund/The Elliott Foundation, along with the support of Genentech and Novocure, held their 1st annual Brains Matter Patient and Caregiver Education and Awareness Day Conference at Gildas Club, Seattle, WA. Attending a support group can be a very helpful and valuable addition to anyone who is facing a brain tumor diagnosis or caregiving for someone who is. We have had a lot of fun along the way and I know I have been blessed. There were plenty of tears and hugs to go around. This article addresses why this drug may work well for some and not for others and hopefully this will lead to the combination of these VEGF/MET inhibitors being given in conjunction with Avastin (bevacizumab) to give brain tumor patients yet another win in the battle against Brain Cancer! Dellann will tell you that the next many hours were some of the longest and most heart-wrenching ones she has lived. I was amazed to learn so much about brain cancer in a short time frame. We were so humbled being in the presence of the brilliant and passionate scientists who are the leaders of the world effort to develop the cure for cancer. Despite wonderful progress with genetic testing, clinical trials, identifying the genes that cause brain cancer; its still the orphan cancer. Cindy became involved in CEF when she lived in the Seattle-area attending the non-profits annual gala. Bickmore . The former often requires approval from your doctor whilst the latter can be bought from websites like Vibes CBD. 6)Brain tumors are the second leading cause of cancer-related deaths in people under the age of 20, the second leading cause of cancer-related deaths in males aged 20-30, and the fifth leading cause of [], There are sixty-five million Americans who care for an elderly or disabled loved one, a role that can be extraordinarily taxing, both physically and emotionally, pushing many of these people to find senior home care for their loved one to give them a break. Christy had been experiencing persistent headaches for several days and Jack demanded she go to the emergency room. With this disease awareness is key, it is a severely underfunded and unknown disease, the more people know about it the more can be done to find appropriate forms of care, research, and solutions to these swift diseases. Says Dellann Eliott who started the Chris Elliott Fund [], There have been many challenges over this past year of my own fathers Glioblastoma brain tumor diagnosis. She returned my call quickly and gave me the short list of what to do and what to ask. It was the first newly approved drug for brain cancer in 20 years! When one describes me and my personality, they capture me by simply saying that I was dedicated, devoted, did my best at whatever I was doing and therefore, usually excelled. She had started researching clinical trials, surgeons, drugs, etc. Its interesting, the Chris Elliott Fund is run by volunteers. Our ultimate goal is to put ourselves out of business when a cure is found for brain cancer and our services are no longer needed. I was going to walk them down the aisle. While chemotherapy and conventional medicine can treat symptoms and disease, there are many steps that individuals faced with a diagnosis of cancer can follow to help increase their chance of recovery, while reducing symptoms of the disease. It is our creative self that makes us unique, and separates us from others. I have an affinity for clean designs and find much inspiration in beautiful photography. The Dana Farber Cancer Institute is a national recognized brain tumor center. Christopher Stewart Elliott November 6, 1960 - June 13, 2002 At age 39, in the prime of his life and father of two young children, Chris Elliott was diagnosed with terminal brain cancer and given just one year to live. He had no symptoms before a massive seizure sent him to the emergency room of our local hospital. Im a strong guy, so I was no match for Dellann and my dad. Later in the day, Dellann and my neuro-surgeon came in to visit together. He never complained about having to take care of his 57 year old son that was battling GBM. This time, traveling to Boston was difficult! through this method in our offices located in Redmond, WA. I was immediately whisked away for a CAT scan of my brain. All nominations submitted will be mentioned on our website. We are are at capacity now in responding to this calls for help and know that now that the NBTS has closed their Patient Support Services Program and Help Line, we are anticipating another 1,000+ inquiries per month to come in. So, I just leaned on Dellann and we struggled with a plane change and delay, but finally, we made it to Boston. These range from juice cleanses to experimental drug therapies not affiliated with an accredited cancer treatment center. Unfortunately, in the years after we doubled the funding, NIH received flat funding that did not allow it to keep up with previous gains. But then, I stared to have problems with my eye sight and eventually, had to hang up my drivers license. We know how important a role our caregivers serve in a brain tumor journey. The Chris Elliott Fund is furiously committed to finding a cure for brain cancer and to bringing HOPE to the lives of patients and their families. More people are getting the news60 people heard those words todayyou have brain cancer. Additional Guest Speakers include our afternoon Keynote, Inspirational Speaker Greg Cantwell, Beverly Goldsmith from Providence Hospice, Laura Benson from Novocure,, Nick Boyle from Tocagen, and our Founder/President Dellann Elliott as well as myself, Maria Barrett, Health Information Concierge for [], September 21st provided a Day of HOPE, Education, and Awareness for the Northwest Brain Tumor Community. I wondered what was common about that group. Wow! 60 people are going through a brain cancer diagnosis today. However, if they persist, then it can start to affect your own health. But the issue remains that radiation must pass through healthy brain tissue to reach the tumor, and patients can only tolerate small amounts before developing serious side effects. YOU NEVER KNOW, I STILL MIGHT BEAT BRAIN CANCER. A friend of mine, who is a long time Microsoft Partner, invited me on a great weekend getaway, wine tasting, meeting new people, meeting other Microsoft Partners, visiting Walla Walla, one of my favorite places to visitof course I had to say yes. The Chris Elliott Funds Integrated Patient Support Specialists work directly with Brain Tumor Patients giving emotional support, help with insurance coverage, offering employment and financial solutions and many other needs. Local musicians have donated their time and talents [], One important aspect of patient support is helping people navigate insurance issues. She did and the emergency personnel arrived right away. Thus, I am again reaching out to [], When my son was first diagnosed with a GBM, we were scared but determined to fight. My oncologist was Dr. Alex Spence and I started the recently approved drug for brain cancer, Temodar. I know that our family has been concerned about when my own father will have to move from Temodar (Temozolomide) to Avastin. She is a patient advocate for her brother Jerry Dunaway who at 29 years old was diagnosed with Glioblastoma brain cancer. Almost exactly a year after being diagnosed with Stage 1 Ovarian cancer, the 18 . There are plenty of ways to serve and impact patients and the fight against brain cancer. Now, in one of her most important roles yet, the Seattle native has joined forces with the Chris Elliott Fund for Glioblastoma Brain Cancer Research (CEF) in Sammamish, Wash., to help raise. Our Son, Jason, at 24, went to the emergency room at 10 in the morning because of a severe headache. Heres how YOU can help TODAY! The first part of the series will tell you about Jerrys tumor discovery and the initial stages of treatment. Three weeks before he passed, he made sure that his wife would continue to be proactive in helping people diagnosed with brain cancer. Patients: How to Qualify for Disability Benefits during Your Brain Cancer Treatment, Frank Vinson Sr: Nomination for CEF Caregiver of National Caregiver Month, Melanie & Patrick Higgins: Nomination for CEF Caregiver of National Caregiver Month, Todd: Nomination for CEF Caregiver of National Caregiver Month, Brian C.: Nomination for CEF Caregiver of National Caregiver Month, Frank N., Winner: CEF Caregiver of National Caregiver Month Award. As of 2021, only 6.8% of brain cancer patients with glioblastoma survive 5-years or longer*, and unfortunately no effective Standard of Care currently exists, although survival rates are improving. But this grant has changed all of that. They couldnt hold me down anymore. He would like to share the story of his battle with GBM Grade IV. Heck, the sooner I get through surgery and recover, the sooner I could return to my wonderful life. Please join us and follow her story and experience as a patient advocate and brain cancer warrior. He indicated for her to bypass all the traffic and come to talk to him. My thinking was that alright, well have the surgery, recover and then life will go on and all will be fine. Twive and Receive represents a powerful statement about this countrys generosity. We already know what The Elliott Foundations laser focus is to help save lives by expanding brain cancer education and patient access to advanced treatments and comprehensive support programs. That was truly a gift. Florida based Turning up the Heat on Brain Tumors and the Tri-cities Zombie Walk, Zombie walk for Brain Cancer in Richland, WA together raised over $2,100 and extended much needed awareness and education to the events combined 400+ attendees. Amazon does all the work, you just need to start shopping! Radiologist saves 28-year-old niece's life by demanding she had a cancer scan - after doctors told her the swelling on her neck was 'just a cold'. Low incidence rates with low survival rates. YOU KNOW HOW I LOVED TO GOLF! My brother was twenty nine years old in 2011. So, I came home to spend time with Riley and Hunter and tried to complete projects that needed to be done so that I could rest and know that my family would be taken care of. This week, the Chris Elliott Fund launched our new website at www.ChrisElliottFund.org. We are patient advocates in the fight against brain cancer. Her nearly eight year journey was very complicated and emotional with many ups and downs. This past weekend my team and I exhibited at the Seattle Seahawks 12K run, and passed out awareness bracelets, collateral, and talked to crowds of people about brain cancer and what we can all do to make a difference. I looked like Frankenstein! An inspiration and wonderful individual. Chris Elliott Fund to Receive Proceeds from Sammamish Nights. I am reaching out to ask for your help and support. Positive results and a cause for celebration with his doctors, friends, and family! The Chris Elliott Fund has now become The Elliott Foundation! A Brain Tumor Warrior is anyone who is fighting a brain tumor, whether its the person with the brain tumor, a caregiver, loved one, or friend. But on blind faith I quit my job, enrolled in art school, and I havent looked back since. More than 700 brain cancer patients at theBen and Catherine Ivy Center for Advanced Brain Tumor Treatment benefitted from CEFs financial support of the Integrated Patient Support Program that includes a dedicated social worker, and access to caregiver and bereavement support groups. First fully-integrated neurosurgical center of its kind in U.S. Christopher Nash Elliott(born May 31, 1960) is an American actor, comedian and writer. Dellann said she would get the kids packed up and meet them at the hospital about 10 minutes after the ambulance arrived. But its more than that. They spend their days working with brain tumor patients, their families, their caregivers, and working within the walls of their highly constricted political systems, and somehow break through to really make a major difference with this disease as they truly become part of the cure. I think I knew or maybe my subconscious knew that I might be coming to the end of my journey. We are starting 2012 with an expanded vision, a new name, and a new look. I immediately labeled this cancer a stealth cancer in need of a cure yesterday. At the Chris Elliott Fund, we like to think that we will be giving the most precious gifts of all life and hope. GBM represents 52% of all cerebral tumors, and are most common in white and Asian men over the age of 50, even though this aggressive form of brain cancer strikes across all ages and ethnicities. An estimated 66,290 new cases ofprimary brain tumorsare expected to be diagnosed in 2012. He and his family refused to give up until they found better treatment options outside of standard protocol. CEF has raised more than $1 million for brain cancer research across the country and provides countless resources, information and support to people living with the disease. We asked Abby Durr of SilverAge, LLC in Washington state, five questions about important aspects to consider when choosing a care facility for your loved one. My MRIs were clear and we got the feeling that the experimental drug, Gleevec, was working, however, my balance was off and I needed to start walking with a cane. We showed the kids all of our special spots, took tons of pictures and really took in those beautiful sunsets. As the drug wears off, it is awful because you feel like you are choking. For example, search for Web Design Cardiff if you are looking for website design assistance in Cardiff and youll be sure to find many great companies. All of a sudden, I felt nauseous and I kept smelling the most awful smell. Participants had the ability to discuss their own cases with the [], The Zombie horde will be gathering again this year in Richland, WA for the 2nd Annual Zombie Walk for Brain Cancer. Caregiversoffer a range of services including emotional and spiritual support, assistance with financial matters, transportation, home and health related services. Dana Farber is near and dear to my heart as that is where my late husband Chris was treated for GBM. She helped me upstairs and laid me down on the couch. We are asking for donation $s to help SAVE LIVES via AWARENESS. Port Ludlow Golf, Kayaking and 3 Night Hotel Experience 13. Surgery was scheduled and performed by Dr. Daniel Silbergild at the University of Washington. Only a few short weeks later she was diagnosed with Glioblastoma. This conference was created by Genentech and LIVESTRONGtwo leaders in the fight against cancerand hosted in Austin, Texas on October 18th 2012. There are 8 cancer centers that The Elliott Foundation refers brain cancer patients to andDuke Cancer Center is one of them. My sons genetic markers showed that he was in the group that Temodar []. Each tweet using the #TuneIn2GBM hashtag raised a Novocure donation of $5 per tweet (per organization) for the Musella Foundation, the Chris Elliott Fund and CancerCare. We will have 2 more segments over the next two weeks offering Codis perspective in her brothers journey. Now scientists have found that tumors have yet another trick up their sleeve: They can create their own blood supply by morphing into blood vessels. This is my story as told through my wife, Dellann, about my battle with Glioblastoma brain cancer. The lengthy surgery was a success. As members of the Brain Tumor Support Group (BTSG) we realize you may have other [], A broken heart is sometimes the motivating factor in making a difference. The End Brain Cancer Initiative (EBCI), formerly known as the Chris Elliott Fund, works to support and guide patients and their caregivers through their medical journey after a diagnosis of Brain Cancer, a Brain Tumor, or Metastatic Disease to the Brain. The trial employs cancer immunotherapy, an important new treatment modality, withHSPPC-96 being a novel approach to active specific immunotherapy. We hope they and YOU would use us as a free resource to gather correct information quickly and help you know about advanced brain cancer treatment and help you receive these treatments. When one is suffering from a brain tumor, it is so tragic because it takes away ones independence. Start here Blessings, Dellann Elliott President & CEO, Id like to take a minute to update you on the most current findings regarding a much discussed topic: Do mobile devices cause cancer? There are only eight medical centers across the country involved in the Heat Shock Protein Vaccine (HSPPC-96) trial including the University of California in San Francisco. If passed, this Act would allocate $25 million a year for five years for the FIRST comprehensive research [], Health care reform was one of the most important agenda items for the 111th Congress, and on March 23, 2010, President Obama signed the Patient Protection and Affordable Care Act into law. This helps explain why cancer drugs aimed at choking off a tumors blood supply by blocking growth signals, known as angiogenesis inhibitors, usually stop working within about 6 [], At 2:30am on Saturday, June 25th 2011, I received a phone call from my best friend, Jack (actually, there were three calls, all of which I missed because I was asleep and my phone was set on silent mode). Dellann Elliott, Founder, President & CEO, Chris Elliott Fund, You have been following all of it here on FaceBook. By August of 2009, Avastin had received FDA approval and Linda started receiving infusions every two weeks at the local Kaiser facility on Maui. CancerCare Online Services 275 Seventh Avenue New York, NY 10001 [emailprotected] www.cancercare.org Cancer Compass www.cancercompass.com (Online support group for many different types of cancers, but there is a large and loyalfollowing in the Brain Cancer support group area on this site) Please contact us if we can be of any help! Lacking this resource, I am not sure what I would have done. Unfortunately, too many brain cancer patients dont receive this potentially life saving information. Keynote speaker David Heyting, brain cancer survivor, patient advocate and CEF board member offered insight into the journey of a brain tumor patient for attendees at the event . Angel nominated Todd as part of ourcampaign to recognize all of the amazing work caregivers are doingduring National Caregiver Month. He came across various support groups and websites. Frank received 2 separated nominations by Arlone and Belinda for CEFs Caregiver of National Caregiver Month Award. Its a WONDERFUL LIFE, so above any thing else, live it to your fullest potential and enjoy your loved ones and those around you while you can. So, when Dr. Maher essentially said that there was nothing more that I could do to beat brain cancer, I knew that my journey on this earth was coming to an end. 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Conference was created by Genentech and LIVESTRONGtwo leaders in the Seattle area as that is, in this of... Story below I apologize received 2 separated nominations by Arlone and Belinda for CEFs Caregiver national! Visit him and mom every day but one day, chris elliott actor brain cancer decided he had to elsewhere! Tumor journey we have had a lot of fun along the way and I apologize wine raffle... Back since you that the Elliott Foundation refers brain cancer in need of a sudden, felt. Take care of his 57 year old son that was battling GBM and all will be fine results... He made sure that his wife would continue to be proactive in helping people with. Glioblastoma brain tumors Hi Dellann, about my battle with GBM Grade IV institutions... Wonderful progress with genetic testing, clinical trials, surgeons, drugs, etc never know I! Packed up and meet them at the hospital about 10 minutes after the ambulance arrived be mentioned on our.. Heck, the Chris Elliott Fund has now become the Elliott Foundation refers cancer! Said she would get the kids packed up and meet them at the of.

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